Terms of Reference
What is the Perinatal Palliative Care SIG
The PSANZ Perinatal Palliative Care Subcommittee was established in late 2013. The purpose of the PSANZ PPC Subcommittee is to promote research, education, and improved service delivery in perinatal palliative care in Australia and New Zealand. We are keen to increase our membership and involve anyone who wishes to contribute to the work we are undertaking in Perinatal Palliative Care in Australia and New Zealand.
Membership is free but those wishing to join the PSANZ PPC Subcommittee are encouraged to become PSANZ members.
We welcome enquiries about the PSANZ Perinatal Palliative Care Subcommittee.
If you have any queries regarding the PPC SIG, please feel free to contact the Secretary PSANZ PPC Subcommittee, Dr Sarah Bellhouse, at firstname.lastname@example.org
Role of the Perinatal Palliative Care SIG
The overall mandate of the PPC SIG is to pool knowledge from a range of practitioners and interested parties and to enhance collaborative efforts to improve service delivery and understanding in the area of perinatal palliative care. This group seeks to collaborate with other relevant parties within the traditional disciplines of PSANZ (for example, neonatology, midwifery, obstetrics, neonatal nursing in Australia and New Zealand), as well as other groups (paediatric palliative care, genetic counselling, bioethics in both countries) to establish closer ties and enhance knowledge exchange. The group will engage in the identification of barriers to service delivery, the conduct of research and publication of research findings as well as dissemination of information via guidelines, handbooks, and public fora such as the internet, conferences, presentations, and workshops.
In carrying out this mandate, SIG members will:
- Share their expertise, knowledge, and experience relating to the objectives and activities of the SIG;
- Assist in communicating the goals and activities of the SIG with members of their professional bodies;
- Assist in the design and conduct of research projects in which they have a special interest or expertise, guidelines, and other dissemination materials;
- Review and provide feedback on reports, journal publications, other materials for dissemination, and research instruments as they are developed;
- Contribute in the sharing of key findings with members of their professional community and other relevant audiences/stakeholders;
- Provide advice regarding potential topics to be highlighted in research or policy development;
- Participate in the dissemination of key findings to relevant audiences.
- Role of individual Perinatal Palliative Care SIG members
The role of the individual members of the PPC SIG includes:
- providing guidance to SIG members;
- attending meetings either in person or via teleconferencing;
- considering ideas and issues raised;
- reviewing the progress of issues pursued;
- contributing to research projects of particular interest to them and the development of materials for dissemination.